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- Nemaline Myopathy
Website
- This is the best site for all resources on the
web on Nemaline Myopathy. It is a good source of reference for
anyone looking for a non-medical description of the disease and for
information on how the disease affects peoples everyday life.
- Nemaline
Myopathy: A Clinical Study
- This links to a PDF document containing the
details of a clinical study on NM. It contains a large number of
facts and figures on the disease although is quite technical.
- The Instituite
for Neuromuscular Research
- A link to the Research Institute at Westmead
Children's Hospital in Sydney. The site contains information on NM
and the group of Doctors that provide help in caring for Eliza.
- Muscular Dystophy
Association (USA)
- Links to many articles on NM and a few answers to
some of the questions you may have on NM
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